At Lupus Lives Foundation Inc., we are committed to ensuring individuals living with lupus and other chronic illnesses are seen and supported. We exist to break the silence surrounding invisible illness, challenge stigma and bias, and create spaces where healing, mentally, emotionally, and physically, can begin. Through education, advocacy, and connection, we remind every individual that their experience matters and that they never have to navigate their journey alone. Invisible illness is real, valid, and deserving of compassion, care, and community.
Our Story
Lupus Lives Foundation Inc. is committed to centering marginalized voices and breaking the stigma surrounding invisible illness. We understand that lupus is deeply connected to identity, mental health, and lived experience, and we respond with compassion, education, and advocacy rooted in real understanding.
At our core, we are more than an organization—we are a community.
“You don’t have to suffer in silence anymore.” 💜
Meet our team
Behind every service we provide is a dedicated team of professionals, each bringing their unique expertise and enthusiasm to our organization.
Shalitha Johnson
Founder
Vincent Lockett
President
Symone Kenebrew
Secretary
Our commitment
Lupus Lives Foundation is distinct in how it intentionally centers marginalized voices and challenges stigma and bias surrounding invisible illness. It recognizes that lupus does not exist in isolation from race, gender, mental health, or social identity, and it responds with compassion, education, and advocacy rooted in real understanding. At its core, Lupus Lives Foundation Inc. is not just an organization; it is a Community.
View our latest work
Efforts in Cook County brought our founder to the floor of the Cook County Commissioners Board to tell her story and recognize May as Lupus Awareness Month. Below is her testimony!
